Terri,
I have followed your page from October 2005 and found out about it from Sarah Eason, who lives close by. Her son Johnny and Jack were weeks apart and both were hypoplast kiddos (Johnny right heart, Jack left). Those were happy, heady days as she and I commiserated about meds, reflux, therapy and clinic visits.
I always your grace under pressure and how well you handled losing your child. Never did I think that we would be in the same situation, no offense intended. I always thought we would beat the odds, since we did everything they said to do and took Jack one of the best heart centers in the world. Sadly, we are now linked forever on this same journey. And it stinks. Most days I can't believe Jack is not here and my arms literally ache to hold him again. Which is ironic since he was never much of a cuddler.
We are haunted by our days in Boston and remember how desperate we were. That's why we started Jack's Heart Fund~ to help out other families in similar situations and to honor his memory.
Please don't feel like you need to donate to our fund, you have been through so much already! But if you want to, we will certainly put it too good use. We usually give out $200 Visa gift cards, so families can use them as they like.
Our address is
4305 W. 94th Street
Prairie Village, KS 66207
My prayers are with you today and always. I am so sorry our boys aren't with us and that we are on this painful journey.
Bridget
